Tag: James Harlan

James Harlan, Advocate For Families With Special Needs, Dies At 71

Tuesday, May 15, 2018 || By Michael Romain || @maywoodnews 

Featured image: James Harlan, left, with his son, Jason. | Photo submitted 

James Harlan, the president and founder of the Just for Men group, an affiliate of the Answer Inc., a prominent autism awareness nonprofit founded by his wife, Debra Vines, has died. In a Facebook post uploaded Monday, Vines said that her husband died on May 13. He was 71.

Continue reading “James Harlan, Advocate For Families With Special Needs, Dies At 71”

Autism Awareness Leader, the Focus of a PBS Special, Uses Maywood, River Forest to Illustrate Disorder’s Racial Divide

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A PBS NewsHour segment profiles Debra Vines, below left, James Harlan and their adult son Jason Harlan, pictured above during his childhood years. | Screenshot

Screen Shot 2017-02-07 at 9.22.05 PM.pngTuesday, February 7, 2017 || By Local News Curator || @maywoodnews

Debra Vines, the founder and executive director of the Forest Park-based nonprofit The Answer, Inc., looked into the camera with a disarming smile to put autism and other mental impairments on notice.

They may exist, but they won’t define those who have them — especially not her son, Jason Harlan.

“Jason is going to be the first autism model on the cover of GQ magazine,” Vines told special correspondent John Donvan in a PBS NewsHour segment that aired Tuesday night.

PBS profiled Vines, her son Jason and her husband James Harlan for the segment, called “Children of color with autism face disparities of care and isolation.”

“When you’re black and autistic, you face a set of disparities,” Donvan said during a voice-over narration set against footage of the family preparing food in their kitchen.

“They begin with the fact that, when it comes to autism, diagnosis skews white,” the correspondent says bluntly, summarizing the analysis of Laura Anthony, a neuropsychologist with the Children’s National Medical Center.

“If you’re anything other than a 7-year-old white boy, even if you’re a 7-year-old white girl, you’re less likely to be identified with autism,” Anthony said.

To illustrate that racial chasm, Vines took Donvan to a bridge along Madison Street that spans the Des Plaines river and is like an invisible wall separating predominantly black Maywood and predominantly white River Forest.

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PBS Correspondent John Donvan interviews state Sen. Kimberly Lightford (D-Maywood) during a Feb. 7 segment on autism’s racial divide. | Screenshot

“Once you’re in River Forest, the services for special needs are like the Holy Grail,” Vines told Donvan. “The services just open up for special rec, for education, for advocacy, for ADA.”

Pointing in the direction of Maywood, “There’s no special rec this way,” Vines said.

The segment also explores Vines motivations for starting her now well-known nonprofit, so-called, Vines said, told Donvan because of its unique mission (“so many families are always asking questions [about autism and other mental impairments], so we want to be able to provide them the answers”).

Vines told Donvan that she realized that there was something lacking in her capacity to provide for Jason, that she “doing it all wrong,” after going out of her community to a support group, where she was the only African-American. The disadvantages, she realized were “because of where [I] lived.”

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A graphic showing Center for Disease Control statistics during the FEb. 7 PBS segment. 

“Meanwhile,” Donvan noted, “she also learned that her own African-American community was not entirely accepting of Jason’s difference.”

James Harlan said that he had to also deal with the feeling of shame that he experienced during his encounters with those in his community who weren’t very sensitive to his son’s needs.

Learn more about Debra’s and James’s experiences raising their son Jason, and about their fight to bridge the racial resource and awareness gap between blacks and whites who area dealing with autism by watching the entire PBS segment here. To read more about The Answer, Inc., click hereVFP

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For James and Jason, Autism the Source of a Lasting Bond

Thursday, March 26, 2015 || By Angelique White 

James Harlan says the love he has for his family is what drives him to take care of his 27-year-old autistic son Jason while his wife, Debra Vines, runs their non-profit, The Answer, Inc., an organization for parents with autistic children.

Harlan is the president of the Just for Men group, an affiliate of the Answer Inc. He deals with fathers and men like himself, providing them with the support and resources necessary for caring for loved ones who have autism. He says being the main caretaker for the last seven years came easy  to him due to the support of his wife. He credits her for working with James when he was younger and getting him to the point where he is mostly self-sufficient. Harlan says Jason can make up his bed, take out trash, cook, clean and do laundry–all with minimal assistance.

“Watching Jason has made me appreciate the little things in life that I use to take for granted,” says Harlan.

Harlan recalls the time doctors told him that Jason would never talk or even do most of the things he does already.

“I tell people doctors practice medicine, it’s not a perfected art they’re still learning, they’re still practicing it,” says Harlan.

This is also what he tells some of the men in his support group. He encourages them not to just accept what the doctors tell them and just hang their heads low. He tells them to work with their children and have faith.

“My wife and I refuse to accept when limitations are put on people,” Harlan. Harlan says if he had half the guts his son has to accomplish things, he would probably be a millionaire. He describes Jason as extremely fearless.

Harlan says it’s been about a year since he’s been ‘out with the guys’, but he doesn’t miss that part of his life.

“I would rather be here with him knowing that he’s happy, he’s cared for and he’s safe,” says Harlan. “I like being with him, he’s a good guy.”

Harlan says he’s hopeful they can get Jason to a point where he can live on his own, but with assistance. Harlan says nowadays he lets Jason take the lead in most things so that his son can feel self-reliant. He says he doesn’t want Jason to be totally dependent on another person.

“I don’t want him to feel like he needs me, because me and his mom aren’t always going to be here,” he says. “According to nature I should die before Jason so he has to be ready when that time arrives and he’s going to have to take care of himself.”. VFP

On May 2, 2015, at 12 PM, The Answer Inc., will hold its annual walk-a-thon to raise funds for children with autism. Click here for more information.